Extramammary Paget's disease (EMPD)

Extramammary Paget’s disease (EMPD) stands as an uncommon intraepithelial adenocarcinoma, or skin cancer, primarily manifesting around the genitalia, anus, perineum, groin, or axillae (armpit) regions in both women and men. In exceedingly rare instances, it may present elsewhere in the body. Notably, EMPD shares cellular characteristics with Paget’s breast cancer.

Initiating in the epidermis, EMPD, if untreated, can progress to infiltrate the dermis, heightening the risk of underlying malignancies. Given its scarcity, no definitive diagnostic or standardized treatment protocols for EMPD have been universally established.

The vulva emerges as the most frequent site for EMPD occurrence, accounting for 65% of cases. Approximately 20% of EMPD diagnoses pertain to the perianal area, followed by ... Read More →

EMPD SYMPTOMS

The predominant symptoms of extramammary Paget’s disease (EMPD) typically entail the presence of a rash or the development of red, scaly, or crusty patches in the genital or anal regions. These areas often provoke itching, a burning sensation, and occasionally, they may bleed.

Given the resemblance of its symptoms to other conditions, extramammary Paget’s disease (EMPD) is frequently subject to misdiagnosis. Patients with EMPD may exhibit a singular symptom, multiple symptoms, or in exceptionally rare instances ... Read More →

Recently DIAGNOSED with EMPD?

Receiving a diagnosis of extramammary Paget’s disease (EMPD) can be overwhelming and disconcerting, both for the individual affected and their loved ones. This guide aims to provide clarity and understanding amidst the uncertainty that accompanies such a diagnosis… Read More →

EMPD RESEARCH

While extramammary Paget’s disease (EMPD) is rare there have been a number of medical studies completed on the subject over the years. Due to the limited participation, some of the studies… Read More →

EMPD DOCTORS

Extramammary Paget's disease (EMPD) stands as a rare malignancy, potentially lethal if left unchecked. Despite the fact that primary care physicians diagnose it half the time initially, patients with EMPD frequently endure prolonged and ineffective treatments before an accurate diagnosis is achieved. In efforts to expedite the diagnostic process, individuals presenting with EMPD symptoms often seek consultation with medical specialists who possess a deeper understanding and familiarity with this condition … Find a List of Doctors who have Treated EMPD →

EMPD Patient Profiles

Delve into the stories and experiences of individuals affected by extramammary Paget’s disease (EMPD). Within these accounts, you'll encounter insightful profiles of patients who have courageously navigated the challenges posed by this rare and often misunderstood condition… Read More →

EMPD NEWS

Occasionally a news story or blog is written about extramammary Paget's disease (EMPD).

• The Washington Post: Doctors thought he just had jock itch. Then it spread.

• The Washington Post: Hoping to find other patients, he revealed a cancer often mistaken for ‘jock itch’

• 胯下紅疹似濕疹拖一年求醫 50歲男患癌延醫脊椎被侵蝕

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EMPD Photos

Extramammary Paget’s disease (EMPD) can vary in its appearance and location. View EMPD Photos →

The content on this website, including text and visual materials, is intended to raise awareness of extramammary Paget’s disease (EMPD) and help individuals understand its complexities. However, it is not a substitute for professional medical advice, diagnosis, or treatment, nor does it endorse any specific treatments, tests, physicians, procedures, or products. If you suspect symptoms of EMPD, we encourage you to consult a qualified healthcare provider for proper evaluation and guidance.